Update 42 [the good, the bad & the Trudy]

THE BAD

  • He had a very rough night and consequently a low mood today.
  • The tracheotomy facilitates the required deep breathing that he simply can’t do on his own because his ribs are, and have been, fused to his spine for the past 40+ years.
  • By nature he breathes with his stomach and diaphragm. He can not do that now because he is currently paralyzed.
  • He cannot speak with the tracheotomy in. Being silent and immobile for 1 week now has made the grip of his will simply not as vice like.
  • He had a fever this morning, suggesting a potential infection somewhere.  They apparently have the fever under control now, but the feeling that complications are beginning to lurk like things that go bump in the night are starting to seep in.

THE GOOD

  • I can’t update about the macabre practically of the situation without trying to add some slight positivity.
  • Dr. M said the movement in his right arm was up from a Grade 1 to a Grade 2, this is apparently a good thing…
  • This is his nurse on duty, his name is Reggie and he is totally adorable.photo 1
  • Mum is watching Netflix on a iPad mini, or she might be sleeping, either way also totally adorable. photo 2
  • His sister (Aunty) Lorna is going to come down from the UK to give him a solid what’s what.
  • We are all on him like white on rice.

THE UGLY

  • Trudy.6135_123083340765_3126318_n

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(ps I don’t actually think my sister is ugly but it helps to make fun of her at times like these, kidding she is totally ugly.)

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